Just a suggestion while u contemplate things* hile our Blizzard had an outrageously high liver enzyme he too had no desire to eat *we added the supplement SAMe and coated his tummey with pepcid lower GI with carafete and also aluminum hydroxide concentrate rx a super maalox type syringed fluid drink we gave 2x aday His obvious distress waned and he did eat as his enzymes and associated nausea lowered* maybe this could help? Please ask ur medical team??? Best wishes. Sue n Angel Keesha*
Sent from my Verizon Wireless BlackBerry
I sent this yesterday morning but it didn't go through or didn't post
for some reason. Trying again.
Wil
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Yesterday afternoon, we took Grey to the doctor I talked about on
Tuesday. Through review of the labwork, reports, history and exam, he
determined we can't be certain what is happening to Grey without opening
him up. It could be any number of things. All we know for sure is he's
wasting away and he has very high liver numbers with ALT of 554 and ALKP
of 3858. Otherwise, his labs of last week all looked pretty dang good.
The AST and GGTP were high but not too far out of range
He says the "80 mm primary liver mass" as seen by the sonographer could
be something like an inflamed gall bladder. Another medical expert has
been telling me this tumor may very well be a cyst. The tumor seen
"slightly caudal to the liver" could be just about anything. Regardless,
the sonograph doctor could not/would not provide me with either printed
or digital copies of the pictures she captured. She wasn't able to print
them the day of the procedure due to the printer being out of paper. She
finally admitted yesterday she lost the files or screwed up when taking
the pictures. Due to a prior experience with her some years back, I
never had confidence in her abilities. It appears she's once again
showed her incompetence.
So anyway, the older doctor decided the best thing for now is putting
Grey on low-dose prednisolone to go after inflammation and try to shrink
whatever's growing inside him without completely burning down his liver.
We hope for appetite increase so I can better attack the anorexia or
cachexia or whatever you want to call it. He says he doesn't think Grey
is in pain but if he is, the prednisolone will help. He asked me to cut
back on my recent addition of 25 mg bid/tid Tramadol to once a day.
We're still in test phase with the Tramadol so he hasn't had any since
yesterday. It's bothersome to me that Grey obviously isn't feeling as
well today and is quite disinterested in food.
I just don't know what to think. I do know that over the past 26 days,
while sedentary, Grey has eaten a precisely monitored diet and has
averages 722 calories per day with 39% of calories from protein, 20%
from carbohydrate and 41% from fat. In the meantime, he's lost 2 pounds
since Feb 10 and is down to 46½ pounds. The doctor says I'm feeding him
well and using the best supplements and medications for him. He
recommends against hitting him with L-Arginine and BCAA's at this time.
I also know that it's a challenge each day to get his food into him.
Then there are the questions of how much protein his kidneys can handle,
how much fat is too much for his liver and if I'm feeding a cancer with
carbohydrate. It's all very frustrating but Grey and I will continue our
fight.
Wil
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